Praise the good Lord above!
We got a call from the doctor today. I was shaking so badly while talking with him that I could barely hear the words he was saying.
But I heard him. Loud and clear.
Nora Grace has Turner's syndrome.
I never thought in all of my days that I would be so happy to get news like that. I was certain for days that what we were looking was Turner's syndrome. But then, last night it hit me like a ton of bricks that it could have been trisomy 13 or trisomy 18, both fatal outcomes regardless. All the pain came crashing down again, and it was hard. But I was wrong! I am cheering that I was wrong. I NEVER cheer at being wrong- I pride myself on my rightness. But the Lord answered my prayers, and your prayers, and he has given our little girl a chance!
Now, as I've stated before Turner's has a low survival rate in utero, but if we can make it to the end here, there is a chance our little one is going to go all the way! We don't know that her fate is to leave this earth as soon as she gets here, and I have never ever been so grateful to God for giving us a chance!
I did the thing that all doctor's hope their patients never do. I'm that girl. Officially.
As I shed tears of joy for the hope that God has given us, all of us, I found myself asking the doctor this:
"I know you can't predict a thing. And this question puts you in a horrible position. And I probably shouldn't ask you this ever. But I need my hope. We've made it this far, Doctor, can we make it further?"
He is gracious. And he said, "I have no crystal ball, Deidre. I can't answer that. But I can tell you that most of my losses to Turner's are in the first trimester or early in the second. I am optimisitic. And all we can do it hope. Let's be positive, and take a look at that little girl's heart on Tuesday to take next steps. We'll also get you in touch with a plastic surgeon to see about getting the hygroma removed after she is here, if we don't see it get smaller before we get there."
BOOOOOOOOOOOOMMMMM. Have you ever heard such beautiful words (other than the wonderful name we've given our little girl...;)!)?
I have a thousand new prayers and fears and anxieties to go with this new diagnosis. And her heart still isn't perfect. But, if that heart can make it, she can too! I want nothing to take away the joy I am feeling in this now hope, so I am going to stop here....but not without asking you to PLEASE continue to pray. We have 19 weeks left to get this girl healthy as a horse so she can prove to this world just how tough she is! Our work isn't done, folks. Let's keep on, keepin' on!
Thank you, thank you, thank you to God, and friends, and family. I can't say it enough times.
Yayayayayayayayayay!!!!
ReplyDelete:D
ReplyDeletePraise the Lord! Praying praying praying for little Nora. Keep kicking lil girl!!!!
ReplyDeleteYay!!! Soooooo happy and celebrating with you!
ReplyDelete